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But you don't look sick
A happy mask was never your best disguise
Created on 2009-03-06 03:42:05 (#18966061), last updated 2009-03-10
0 comments received, 9 comments posted
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4 Journal Entries, 8 Tags, 0 Memories, 0 Virtual Gifts, 6 Userpics
Basic Info| Name: | almost_fine |
|---|---|
| Birthdate: | 11-18 |
| Location: | Nottingham, United Kingdom |
BioI use this journal as a daily (or close to, hopefully) log of my illness and as a place to keep together all my research and resources regarding it, on the reccomendation of my doctor and my step-mother *smile*
If anyone comes across this and wants to know anything, leave any links or just wants to talk, feel free to comment. This journal is open for that reason. Also open to anonymous commenting :-)
Please do not leave comments either pitying me, telling me I'll be fine if I just do this, this or this, or suggesting treatments. Also - to those of you who believe fibromyalgia is 'all in your head' or anything similar, don't bother commenting as I will just delete what you say and move on.
Please excuse any spelling or grammatical mistakes - I am usually very literary but between fibro fog and various meds I often have trouble with it these days.
I am currently off work sick with fibro and associated problems - namely depression and social anxiety. Hoping to be able to work again soon, once I have learned to 'manage my illness' but until then, am trying to apply for benefits asmy sickpay soon runs out. No doubt there will be a few DLA-related rants to come!
I will keep this profile up to date RE: meds rather than having to say the same thing every day in my journal when on a course of something.
MEDS:
Started: on 10mg Amitriptyline (http://en.wikipedia.org/wiki/Amitriptyline) per night to help with sleep problems in the hope that if I had more sleep the pain would lessen. Also known to help with migraines so could possibly help with the pain itself. It did nothing.
Thursday 26th Feb - Current: Doubled dose to 20mg Amitriptyline. Suppossed to help with sleep but am still sleeping only 2 or 3 broken hours pers night.However it is making me very dopey and fuzzy and I am resting without sleep an average of fifteen hours per night. I can go to bed at 10 or 11 at night and not have the energy to get up until 4pm the next day. Also terrible drymouth and sore throat. Back in doctor's Tuesday 10th March for a rethink! Also being referred to an NHS counsellor - I'll let you know how long it takes!!
A couple of good sites: http://www.fibrohugs.org/index.php?option=com_frontpage&Itemid=1
Fibrohugs is a good resource for the illness.
http://www.ukfibromyalgia.com/forums/index.php
An excellent fibro forum - I don't say much there but I get a lot of reassurance from the things I read (I'm not the only one going mad!) plus some good laughs on bad days.
I would also like tomake a mention of the Spoon Theory (http://www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf), if you haven't read it before please check it out. It explains illnesses like mine and how we have to live our lives beautifully.
If anyone comes across this and wants to know anything, leave any links or just wants to talk, feel free to comment. This journal is open for that reason. Also open to anonymous commenting :-)
Please do not leave comments either pitying me, telling me I'll be fine if I just do this, this or this, or suggesting treatments. Also - to those of you who believe fibromyalgia is 'all in your head' or anything similar, don't bother commenting as I will just delete what you say and move on.
Please excuse any spelling or grammatical mistakes - I am usually very literary but between fibro fog and various meds I often have trouble with it these days.
I am currently off work sick with fibro and associated problems - namely depression and social anxiety. Hoping to be able to work again soon, once I have learned to 'manage my illness' but until then, am trying to apply for benefits asmy sickpay soon runs out. No doubt there will be a few DLA-related rants to come!
I will keep this profile up to date RE: meds rather than having to say the same thing every day in my journal when on a course of something.
MEDS:
Started: on 10mg Amitriptyline (http://en.wikipedia.org/wiki/Amitriptyline) per night to help with sleep problems in the hope that if I had more sleep the pain would lessen. Also known to help with migraines so could possibly help with the pain itself. It did nothing.
Thursday 26th Feb - Current: Doubled dose to 20mg Amitriptyline. Suppossed to help with sleep but am still sleeping only 2 or 3 broken hours pers night.However it is making me very dopey and fuzzy and I am resting without sleep an average of fifteen hours per night. I can go to bed at 10 or 11 at night and not have the energy to get up until 4pm the next day. Also terrible drymouth and sore throat. Back in doctor's Tuesday 10th March for a rethink! Also being referred to an NHS counsellor - I'll let you know how long it takes!!
A couple of good sites: http://www.fibrohugs.org/index.php?option=com_frontpage&Itemid=1
Fibrohugs is a good resource for the illness.
http://www.ukfibromyalgia.com/forums/index.php
An excellent fibro forum - I don't say much there but I get a lot of reassurance from the things I read (I'm not the only one going mad!) plus some good laughs on bad days.
I would also like tomake a mention of the Spoon Theory (http://www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf), if you haven't read it before please check it out. It explains illnesses like mine and how we have to live our lives beautifully.
ConnectInterests (17):
aspergers, brain fuzz, chronic fatigue syndrome, chronic pain, depression, eating disorders, fibro fog, fibromyalgia, ibs, insomnia, irritable bowel syndrome, migraines, muscle spasms, panic attacks, restless leg syndrome, sleep disorders, social anxiety
External Services:
 | almost_fine@livejournal.com |
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